So how do you not go there? Some thought will cross my mind and suddenly I’m thinking about the chance of my eight year old daughter growing up without me. I think of all the things I want to be there for, and see her do. All the things I want to support her though. [...]
Archive for February, 2009
Not going there
Posted in melanoma on February 20, 2009 | 1 Comment »
Dexamethasone and Cortisol
Posted in chronic illness, dealing with doctors, tagged dexamethasone on February 20, 2009 | Leave a Comment »
So I’ve been tapering dexamethasone down for three months now. My edema gets worse every time I drop the dosage. Everyone says “how strange”. I agree. But it seems to come with the territory for me. It sucks too. My newest oncologist mentioned seeing an endocrinologist if I had further problems, which sounded like a [...]
the plan now
Posted in melanoma on February 20, 2009 | Leave a Comment »
What did I say last? I haven’t looked to see. The plan now with this alien in my lung is to have a PET scan in about ten days, and then see the cancer surgeon in Portland who removed the original melanoma on my back. Provided the PET doesn’t show a whole lot of tumors [...]
damn doctor!
Posted in chronic illness, dealing with doctors, melanoma, tagged dexamethasone on February 3, 2009 | 1 Comment »
Dr McGirr, the Neurosurgeon not only did not chart his instructions to me to titrate off Dexamethasone at my own speed, back in October, but doesn’t remember giving me those instructions at all, despite the fact that I had two people with me at that appointment. I wish I’d audiotaped it.
Currently I’ll be officially AMA [...]
Spelling
Posted in life besides cancer on February 1, 2009 | Leave a Comment »
Some of my posts are appearing with horrible spelling errors. That’s me. When I am not near the big computer and have the chance I end up posting from my phone, which has no spell check. Then when I get the chance I come back and check the spelling from the computer, but sometimes that’s [...]
RTF Chart
Posted in dealing with doctors, melanoma, tagged dexamethasone on February 1, 2009 | Leave a Comment »
So my neurosurgeon, the guy who did the Gamma Knife surgery told me it might take a year to titrate off dexamethasone. I’d had a bad reaction to the “half the dose for three days, half that for another three, then stop”. The Dr said just do it at my own speed. Lower the [...]
Doctors
Posted in dealing with doctors, melanoma on February 1, 2009 | Leave a Comment »
I saw the Eugene Onc. He said this was really small — about 1 cm. He didn’t recommend rushing in to treatment without more information. John and asked about specialists and he knew of one at Providence hospital in Portland. Now I have an apt with that one in mid February. If I’m not [...]
