So the rented wheel chair doesn’t fit through the doorway of the last room before our downstairs bathroom. I can wheel up to the door, then use the walker to get to and into the bathroom. Not too bad.
I got back to the doorway and was at the point of turning myself and the walker [...]
Archive for the ‘chronic illness’ Category
Now I’ve Fallen
Posted in chronic illness, life besides cancer, melanoma on June 20, 2009 | Leave a Comment »
Sleep? Nah
Posted in chronic illness, life besides cancer, melanoma on June 20, 2009 | Leave a Comment »
I’d like to be sleeping. The dogs shoved out through the screen door at 1:30, knocking over the grate that’s supposed to keep them from doing that. John came to see if I wanted to go to the toilet then. I’ve been worried about walking without the brace on my foot and can’t put it [...]
Still voting for scartissue
Posted in chronic illness, foot drop on June 19, 2009 | Leave a Comment »
I had physical therapy today — PT intake, etc. I like the therapist. She does not like my plastic boot — and has ideas about what it should be, although whether insurance will pay for #2 so soon after #1 is debatable.
She says, however taht this isn’t just “foot drop” but right leg er the [...]
This mobility thing
Posted in chronic illness, foot drop, melanoma on June 9, 2009 | Leave a Comment »
I’m doing ok getting around with a walker, and I understand better what happened to cause the need for it, but it’s all damn inconvenient.
The cancer started it.
The same place in my brain that the tumors set off swelling in last summer, got hit by the radiation on its way to killing one of the [...]
No New Cancer!
Posted in chronic illness, melanoma on June 3, 2009 | Leave a Comment »
I had a standard follow up CT scan yesterday. I got the results today. Nothing new. No changes, no tumors, nothing that shouldn’t be there.
I didn’t realise how worried I’d been until I started crying.
I’ll keep on with the mantra. I’m done with cancer. I’m not having any more cancer for now. Yes I live [...]
Today I got a walker
Posted in chronic illness, foot drop, life besides cancer, melanoma on June 1, 2009 | Leave a Comment »
And it’s a relief. I’m not more steady on my feet, but I’m not in fear of falling because of being unsteady. I need to name it, and decorate it, and jazz it up some. The doctor was willing to prescribe it, and insurance is fussing, because it’s not needed for a Melanoma diagnosis… duh. [...]
Cancer pictures
Posted in chronic illness, melanoma on May 31, 2009 | 2 Comments »
I read Jeanne’s post about someone’s post mastectomy photo being called sexual and abusive. I haven’t had a mastectomy, no need, knock on wood. But I thought I’d post photos of what cancer’s done to me anyway. If I can figure out how to get WordPress to let me upload them. Jeanne’s post is here: [...]
Not really here yet
Posted in chronic illness on May 24, 2009 | Leave a Comment »
This is just a drive by post. I’ll catch up eventually, but life’s been busy, kind of. I’m catching up on The Assertive Cancer Patient’s blog at the moment and just saw a post there I really liked:
defining terminal
She also had a more recent post commenting on Debutaunt’s death. Debutaunt was one of the first [...]
Dexamethasone and Cortisol
Posted in chronic illness, dealing with doctors, tagged dexamethasone on February 20, 2009 | Leave a Comment »
So I’ve been tapering dexamethasone down for three months now. My edema gets worse every time I drop the dosage. Everyone says “how strange”. I agree. But it seems to come with the territory for me. It sucks too. My newest oncologist mentioned seeing an endocrinologist if I had further problems, which sounded like a [...]
damn doctor!
Posted in chronic illness, dealing with doctors, melanoma, tagged dexamethasone on February 3, 2009 | 1 Comment »
Dr McGirr, the Neurosurgeon not only did not chart his instructions to me to titrate off Dexamethasone at my own speed, back in October, but doesn’t remember giving me those instructions at all, despite the fact that I had two people with me at that appointment. I wish I’d audiotaped it.
Currently I’ll be officially AMA [...]
