So I’ve been tapering dexamethasone down for three months now. My edema gets worse every time I drop the dosage. Everyone says “how strange”. I agree. But it seems to come with the territory for me. It sucks too. My newest oncologist mentioned seeing an endocrinologist if I had further problems, which sounded like a [...]
Archive for the ‘dealing with doctors’ Category
Dexamethasone and Cortisol
Posted in chronic illness, dealing with doctors, tagged dexamethasone on February 20, 2009 | Leave a Comment »
damn doctor!
Posted in chronic illness, dealing with doctors, melanoma, tagged dexamethasone on February 3, 2009 | 1 Comment »
Dr McGirr, the Neurosurgeon not only did not chart his instructions to me to titrate off Dexamethasone at my own speed, back in October, but doesn’t remember giving me those instructions at all, despite the fact that I had two people with me at that appointment. I wish I’d audiotaped it.
Currently I’ll be officially AMA [...]
RTF Chart
Posted in dealing with doctors, melanoma, tagged dexamethasone on February 1, 2009 | Leave a Comment »
So my neurosurgeon, the guy who did the Gamma Knife surgery told me it might take a year to titrate off dexamethasone. I’d had a bad reaction to the “half the dose for three days, half that for another three, then stop”. The Dr said just do it at my own speed. Lower the [...]
Doctors
Posted in dealing with doctors, melanoma on February 1, 2009 | Leave a Comment »
I saw the Eugene Onc. He said this was really small — about 1 cm. He didn’t recommend rushing in to treatment without more information. John and asked about specialists and he knew of one at Providence hospital in Portland. Now I have an apt with that one in mid February. If I’m not [...]
